My LeioMyo: The Jack and Jill Late Stage Cancer Foundation

Wednesday, February 23, 2011

The Jack and Jill Late Stage Cancer Foundation

Today Show Piece on the Jack and Jill Late Stage Cancer Foundation

This is a link to a story done by the Today Show about this amazing foundation.

Last year our family start working with Dr. Hansen office to be chosen for a "WOW Experience" provided by this foundation.

We really wanted to have a family vacation with our four children before Alden left for two years in Australia. At the beginning of January we heard from the foundation and they presented us with a trip to San Diego.

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January 10, 2012 Passed Away
Dec/Jan 2012 Started new chemo
Dec 2011 Radiation to tumors behind shoulder blade that was cutting off circulation to arm and hand
Oct 2011 Radiation to tumors near T5 to relieve pain
Oct 2011 Belinostat discontinued Tumor growth and new
tumors
Aug 2011 New phase 1 trial Belinostat with Warfarin
July 2011 Radiation to tumor near the T3 in spine

July 2011 Blood Levels not stable enough to continue trial
Apr 2011 Phase 1 Clinical trial Yondelis with Rifampi
Jan - march 2011 Chemotherapy
Doxirubin, Ifosomide and Mesna
Nov 2010 Radiation to arm from elbow to shoulder
Oct 2010 Surgery to remove and replace humerous bone and
tumor.
Oct 2009-Jan 2010 Chemotherapy Cisplatin, Doxil and Temodar
Aug 2009 Radio Stereotactic Surgery for Lung tumor near rib
that could not be reached by RFA
July 2009 RFA to tumors in right lung
Aug 2008 RFA to lung
Mar 2008 Gem Tax Chemo
Nov 2007 Radio Frequency Ablation to right lung
Oct 2007 Radio
Frequency Ablation to left lung
July 2007 Replaced
Port a Cath with Power Port
Mar- Aug 2007 Gemzar
and Taxotere 3 round then Gemzar only
Feb 2007 Clinical
Trial of Sorafinib Taken off trial due
to side affects and nodule growth
Jan 2007 CT 3 nodules in lungs Bone scan shows uptake on
3rd rib not changed from last years scan
2005 -2006 CT Scans every 3 months
showed no evidence of disease.
Feb 2005 Gemzar and Taxatere 3 rounds
Dec 2004 Right Lung thoracotomy
Dec 2004 Left Lung thoracotomy
Aug 2004 Chemotherapy Gemzar and Taxatere 4 rounds
Aug 2004 Surgery to place Port a Cath
Jul 2004 CT Right lung nodule grew to 4mm and 2.1 cm Left
nodule grew 8mm
May 2004 Xray shows slight growth of nodules
Apr 2004 CT show 2
nodules right lung 4mm and 1.5cm 1 nodule left lung 4mm
Mar 2004 Left Lung Thoracotomy Removal of 1.5cm tumor 3-9/10 Mitosis
Dec 2003 Cat Scan show 1 nodule 1.3cm in left lung
Nov 2003 Hysterectomy,
surprise LMS 8 cm High Grade 12-16/10Mitosis