Another day at Huntsman. I left home at 8 AM and got to Huntsman by 9 AM. Today I am to have labs drawn, take a pill, then have a series of labs drawn over the course of eight hours. All in a days work. The pill is Warfarin (Coumadin). The first week I will come back to Huntsman each day for a blood draw. Documentation will be made to see how the blood reacts to the Warfarin.
In two weeks I will start on the drug Belinostat. I will have just as many blood draws to watch and see how the blood reacts or changes. As long as my body can handle this drug I can stay on the study for six weeks. I can use the drug longer if it is beneficial.
I am praying for some great results. As I looked over my last CT Scan I found that the tumors continue to grow. I need and want them to stop.
Good things about being at the hospital for nine hours:
I got to read more of the book "Animal Vegetable Miracle".
I caught up in my email and facebook. I looked at all of Britney's new post on her blog!
I played a couple of games of Sudoku.
I had a wonderful free lunch. A beautiful salad with salmon.
I am writing on my blog!!
Now the long day is over and I have the drives back and forth to Huntsman for a blood draws each day for the next week,
Tuesday, August 23, 2011
Monday, August 15, 2011
A New Trial to Look at
Today I went to see Dr Gouw and talk to him about a new trial drug. I had blood work done and an EKG. We talked to the Dr. about the new drug and some new developements in fighting cancer. If I can stay alive long enough to take advantage of all the smart things they are doing for cancer, I would be happy.
I had a CT scan done as a baseline for this trial.
I am thankful for smart people that work hard to cure cancer.
Everything looks good to start the trial next week.
I had a CT scan done as a baseline for this trial.
I am thankful for smart people that work hard to cure cancer.
Everything looks good to start the trial next week.
Saturday, August 13, 2011
Family Reunion Star Valley Wyoming
Thursday August 11th.
I woke up knowing that the car should have an oil change before we left for the valley. I was lucky to have gotten right in to Jiffy Lube, a crowd of people came behind me. As I finished there the kind worker let me know I had a nail in my tire. They also let me know I needed a new air filter.
I decided to go to Sam's Club to get fruit that we needed for the meals at the reunion. I then went into Walmart to pick up a filter. As I walked into the store my foot turned in my sandal and it broke. I had to pick up a pair of flip flops because I did not have another pair of black sandals.
On the way home I stopped to have the nail removed from the tire and fixed.
All that by 10 am. We finished packing and were on the road by 11AM. We decided to go through Logan and Bear Lake. This was the way that we took to get to Star Valley when we got married in Logan. Logan is always a fun place for us. We HAD to stop at K Mart to see if they had any fabulous sales. We got some more fruit at Smith's.
Bear Lake was beautiful! We stopped to get something to eat and a RASPBERRY Shake. Then on our way again. We arrived in Star Valley around 5:30 PM. We stopped in Smoot to find our group but they were not to be found. We went into Afton and checked into our hotel.
We met up with everyone back in Smoot for dinner. It was fun to visit with the families of Brad, Lee, Delmer, Trena, Bart, Starla, Troy, Ryan and Layne. We missed Kevin's and Amy's family. After dinner Shane and I went to Dad and Hazel's motor home and played "Blokus" and watched fireworks that Troy's family lit off.
Friday we ate breakfast with Doyle and Hazel. We went on a scavenger hunt throughout the valley. Each sibling wrote about their favorite place and we guessed what it was and went to that area. We went to the Cemetary where many family members are, we drove past the houses where shane's family has lived. We saw the new high school and where the old high used to stand. Many memories in the valley.
We stopped at the Cheese Factory in Thayne. We walked into some great friends from Roy! It was fun to visit them and hear what they were doing in the area. We made our way up the Grey's river to Murphey lake. This is a favorite childhood memory for Shane and our children. We had lots of food. chairs for visiting and resting, a canoe, paddle boat and raft for taking out on the lake. Fishing gear could be found everywhere. Bart took a remote control boat and attached hook and bait to it. We all had fun watching him try to catch fish from it. It was a beautiful day with the family.
I took Alden's photos and videos to show the family.
We left the lake around seven to get out of the forest by the time it got dark.
We ate dinner in town and got back to hotel. During the night I got sick. I am not sure if it was from radiation or a bug I got. I had a fever the next morning and still did not feel well. After eating breakfast with the family we were on our way back home. It was a fast trip, we did not stop and went through Evanston. We were home in three hours. I slept the whole way and came home and slept the rest of the day.
I was a great time despite not feeling well in the end.
I woke up knowing that the car should have an oil change before we left for the valley. I was lucky to have gotten right in to Jiffy Lube, a crowd of people came behind me. As I finished there the kind worker let me know I had a nail in my tire. They also let me know I needed a new air filter.
I decided to go to Sam's Club to get fruit that we needed for the meals at the reunion. I then went into Walmart to pick up a filter. As I walked into the store my foot turned in my sandal and it broke. I had to pick up a pair of flip flops because I did not have another pair of black sandals.
On the way home I stopped to have the nail removed from the tire and fixed.
All that by 10 am. We finished packing and were on the road by 11AM. We decided to go through Logan and Bear Lake. This was the way that we took to get to Star Valley when we got married in Logan. Logan is always a fun place for us. We HAD to stop at K Mart to see if they had any fabulous sales. We got some more fruit at Smith's.
Bear Lake was beautiful! We stopped to get something to eat and a RASPBERRY Shake. Then on our way again. We arrived in Star Valley around 5:30 PM. We stopped in Smoot to find our group but they were not to be found. We went into Afton and checked into our hotel.
We met up with everyone back in Smoot for dinner. It was fun to visit with the families of Brad, Lee, Delmer, Trena, Bart, Starla, Troy, Ryan and Layne. We missed Kevin's and Amy's family. After dinner Shane and I went to Dad and Hazel's motor home and played "Blokus" and watched fireworks that Troy's family lit off.
Friday we ate breakfast with Doyle and Hazel. We went on a scavenger hunt throughout the valley. Each sibling wrote about their favorite place and we guessed what it was and went to that area. We went to the Cemetary where many family members are, we drove past the houses where shane's family has lived. We saw the new high school and where the old high used to stand. Many memories in the valley.
We stopped at the Cheese Factory in Thayne. We walked into some great friends from Roy! It was fun to visit them and hear what they were doing in the area. We made our way up the Grey's river to Murphey lake. This is a favorite childhood memory for Shane and our children. We had lots of food. chairs for visiting and resting, a canoe, paddle boat and raft for taking out on the lake. Fishing gear could be found everywhere. Bart took a remote control boat and attached hook and bait to it. We all had fun watching him try to catch fish from it. It was a beautiful day with the family.
I took Alden's photos and videos to show the family.
We left the lake around seven to get out of the forest by the time it got dark.
We ate dinner in town and got back to hotel. During the night I got sick. I am not sure if it was from radiation or a bug I got. I had a fever the next morning and still did not feel well. After eating breakfast with the family we were on our way back home. It was a fast trip, we did not stop and went through Evanston. We were home in three hours. I slept the whole way and came home and slept the rest of the day.
I was a great time despite not feeling well in the end.
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